Robert

Robert and his wife Kristen are the proud parents of three boys ~ the youngest of which was born with a rare neuromuscular disorder classified as a Leukodystrophy. Morgan is now 10 years old, and is their inspiration and namesake of this organization. Robert works full-time in Melbourne, Florida at the Florida Institute of Technology. In his free time he enjoys boating, fishing and spending quality time with his family. Although the physical, emotional and financial hardships of caring for a child with a life-threatening illness and all of its associated disabilities can be trying on any family, Robert has dedicated himself to making sure that Morgan gets whatever he needs, and helping other families in the same position to do the same thing for their own medically fragile special-needs children. This organization was born in 2001 to provide Robert and others a means to do just that!